| levenmetalzheimer.nl | Medworq BV | The website Leven met Alzheimer.nl aims to inform patients, family members, and friends about the disease of Alzheimer’s, its causes, symptoms, treatment, and how to cope with it. | Social Organization → Patient Organizations 259 Neurology → Dementia 509 | alzheimer 34 cause 226 symptoms 558 dementia 674 patient 4082 | |
| nfk.nl | Dutch Federation of Cancer Patient Organizations | The Dutch Federation of Cancer Patient Organizations (NFK) is an organization dedicated to advocating for the interests of people with cancer, their families, and those with a predisposition to cancer. | Social Organization → Patient Organizations 259 | surveys 73 cancer 631 patient 4082 research 8967 care 12338 | |
| ahckids.nl | AHC Vereniging | The AHC Vereniging is a patient organization providing support to individuals with AHC and their families in the Netherlands and Belgium. | Social Organization → Patient Organizations 259 Disease & Treatment → Neurological Disorders 100 | symposium 339 patient 4082 research 8967 | |
| harteraad.nl | Harteraad | Harteraad is an organization dedicated to advocating for individuals with heart and vascular conditions in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | heart 534 medication 1164 patient 4082 research 8967 | |
| hemoned.nl | Stichting HemoNED | The website of Stichting HemoNED is a register for patients with hemophilia and related conditions in the Netherlands. | Social Organization → Patient Organizations 259 Essential → Health 91589 | register 362 patient 4082 data 5872 research 8967 | |
| icconnect.nl | IC Connect | IC Connect is an organization dedicated to supporting patients and their families throughout and after their stay on the intensive care unit. | Social Organization → Patient Organizations 259 Health → Medical Care & Services 29461 | ic 20 pain 1919 patient 4082 family 6462 care 12338 treatment 21203 | |
| hartpatienten.nl | Heart Patients Netherlands | The website Heart Patients Netherlands provides information, support, and a platform for heart patients, their families, and peers in the Netherlands. | Social Organization → Patient Organizations 259 Anatomy & Systems → Heart 53 | forum 1362 magazine 2182 patient 4082 news 15293 | |
| bloedziekten.nl | Stichting Zeldzame Bloedziekten | The website of Stichting Zeldzame Bloedziekten provides information, resources, and support for patients and families affected by rare blood diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | rare disease 12 reference 332 patient 4082 association 8562 event 45199 | |
| mevereniging.nl | ME Vereniging Nederland | The ME Vereniging Nederland is the national patient organization for people with myalgic encephalomyelitis (ME) in the Netherlands. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | i 11 guideline 344 advocacy 357 patient 4082 donation 5110 research 8967 | |
| arch.nl | Autoimmune Research & Collaboration Hub | ARCH is a hub organization supporting regional expertise networks for systemic autoimmune diseases in the Netherlands. | Social Organization → Patient Organizations 259 | autoimmune disease 11 knowledge sharing 162 healthcare provider 474 patient 4082 collaboration 16036 | |
| fahrpatientenvereniging.nl | Fahr Patient Association Netherlands | The Fahr Patient Association Netherlands is an organization dedicated to advocating for patients and their families affected by Fahr’s disease, and contributing to research and the association’s operations. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | disease 285 patient 4082 donation 5110 newsletter 6504 community 7931 research 8967 | |
| patientervaringsverhalen.nl | Patient Experiences | The website provides a collection of patient and caregiver experiences, aimed at improving healthcare and supporting research. | Social Organization → Patient Organizations 259 Research → Research Methods 55 | caregiver 1167 patient 4082 collection 7566 research 8967 care 12338 | |
| hirschsprung.nl | Hirschsprung - Patient Association | The Hirschsprung - Patient Association provides information, support, and a platform for patients and families affected by Hirschsprung's disease. | Social Organization → Patient Organizations 259 Medical Care & Services → Pediatric & Child Health 2121 | disease 285 patient 4082 association 8562 treatment 21203 | |
| me-cvsvereniging.nl | ME/cvs Association | The website of the ME/cvs Association provides information about the chronic illness ME/cvs, including diagnoses, treatments, patient stories, news, research, and peer support. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | patient 4082 research 8967 membership 10442 | |
| longkankernederland.nl | Longkanker Nederland | Longkanker Nederland is a patient organization providing support to patients, families, and bereaved individuals dealing with lung cancer. | Social Organization → Patient Organizations 259 Diseases → Cancer 546 | lung cancer 11 healthcare provider 474 patient 4082 research 8967 | |
| vasculitis.nl | Vasculitis Stichting | The Vasculitis Stichting provides information and support to patients and their families with primary forms of vasculitis. | Social Organization → Patient Organizations 259 Diseases → Autoimmune Diseases 31 | organ 633 medication 1164 patient 4082 research 8967 | |
| amyloidose.nl | Amyloïdose Nederland | Amyloïdose Nederland is a patient organization dedicated to advocating for individuals with amyloïdose. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | patient 4082 foundation 6678 story 8285 treatment 21203 | |
| eetstoornissen.nl | WEET | WEET is a patient association dedicated to advocating for the interests of individuals with eating disorders and facilitating contact with healthcare providers and policymakers. | Social Organization → Patient Organizations 259 Mental & Emotional Well-Being → Eating Disorders 199 | relatives 27 eating disorder 55 help 864 patient 4082 care 12338 | |
| lewy.nl | Lewy.nl | The website Lewy.nl provides information about Lewy body dementia, facilitates contact between patients and caregivers, and supports scientific research. | Social Organization → Patient Organizations 259 Neurology → Dementia 509 | forum 1362 patient 4082 research 8967 | |
| denijestichting.nl | The Nije Stichting | The Nije Stichting is an organization dedicated to supporting (ex)cancer patients and their families through psychosocial care, information, and activities. | Social Organization → Patient Organizations 259 Specialty Medicine → Cancer Care 97 | cancer 631 center 1115 wellbeing 2620 patient 4082 | |
| sepsisnet.nl | SepsisNederland | SepsisNet is an organization dedicated to increasing knowledge about sepsis and improving care for sepsis patients. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | knowledge 3528 patient 4082 care 12338 event 45199 | |
| laposa.nl | Laposa | The website Laposa is a national patient and elderly association dedicated to individuals with craniofacial conditions, providing information, support, and a platform for contact. | Social Organization → Patient Organizations 259 Social Services → Seniors 822 | condition 425 patient 4082 research 8967 news 15293 event 45199 | |
| neurofibromatose.nl | Neurofibromatose Vereniging Nederland | The Neurofibromatose Vereniging Nederland (NFVN) is an organization dedicated to individuals directly or indirectly affected by neurofibromatosis (NF), aiming for improved care, greater recognition, and an inclusive society. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | healing 1148 patient 4082 care 12338 | North-Holland → Zaanstreek-Waterland 482 |
| cardiomyopathie-onderzoek.nl | Stichting Cardiomyopathie Onderzoek Nederland | Cardiomyopathie Onderzoek Nederland is a national foundation dedicated to researching cardiomyopathy and supporting patients, their families, and healthcare professionals. | Social Organization → Patient Organizations 259 Disease & Treatment → Cardiovascular Diseases 91 | genetics 104 hospital 560 patient 4082 research 8967 | |
| grinsyndroom.nl | Stichting GRIN syndroom | The Stichting GRIN syndroom is a patient organization that connects people with a GRIN mutation and their families (parents, brothers and sisters, doctors, and researchers) in the Netherlands and Belgium, providing support and information. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | mutation 27 patient 4082 research 8967 | |
| pxe.nl | PXE Nederland | The PXE Nederland website is an initiative focused on funding research into the rare disease PXE. | Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229 | supermarket 406 fund 1063 patient 4082 donation 5110 research 8967 | |
| ichthyosisnetwerken.nl | Ichthyosis Network Association | The website of the Ichthyosis Network Association provides information about various forms of Ichthyosis, supports patients and their families, and connects them through networks. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | condition 425 patient 4082 association 8562 network 11123 | |
| doneereennierbijleven.nl | Doneereennierbijleven | The website Doneereennierbijleven connects people with kidney disease with potential kidney donors. | Social Organization → Patient Organizations 259 Essential → Health 91589 | procedure 750 donor 757 patient 4082 | |
| huntingtonplein.nl | Topaz | The Huntingtonplein is a meeting place that collects and shares knowledge about the Huntington’s disease. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | expertise center 29 handbook 194 knowledge 3528 patient 4082 agenda 4374 | South-Holland → Katwijk 2183 |
| p-l-s.nl | Stichting PLS | The Stichting PLS aims to improve and maintain the quality of life and care for patients with primary lateral sclerosis (PLS) through fundraising, sponsorship, and scientific research. | Conditions → Neurological Conditions 20 Social Issues → Social Organization 13315 | disease 285 aid 427 patient 4082 therapy 7448 research 8967 | |
| zeldzaamziek.nl | Stichting Zeldzaam Ziek | The Zeldzaam Ziek website aims to provide information, advice, and a platform for sharing experiences related to rare and chronic diseases. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | disease 285 patient 4082 foundation 6678 story 8285 care 12338 | |
| belangenverenigingpatientenchiropractie.nl | Belangenvereniging Patiënten Chiropractie | The Patient Chiropractic Interest Association (BPC) is an organization dedicated to advocating for the interests of chiropractic patients in the Netherlands. | Social Organization → Patient Organizations 259 Anatomy & Systems → Specific Conditions 205 | chiropractic 184 patient 4082 association 8562 | |
| neuspoliepensyndroom.nl | Neuspoliepen Syndroom | The Neuspoliepen Syndroom (CRS+NP) association provides information and support for people with chronic inflammation of the nose and sinuses. | Social Organization → Patient Organizations 259 Disease & Treatment → Respiratory Diseases 83 | patient 4082 treatment 21203 | |
| pompeexpertisecentrum.nl | Spierziekten Centrum Nederland | The Pompe Expertisecentrum provides expert advice and information about Pompe disease for patients and healthcare professionals. | Social Organization → Patient Organizations 259 Diseases → Neurological Diseases 21 | healthcare professionals 235 patient 4082 research 8967 treatment 21203 | South-Holland → Rotterdam 25048 |
| xlh-vereniging.nl | XLH Vereniging Nederland | The XLH Vereniging Nederland is a patient association dedicated to advocating for the interests of individuals with X-linked hypophosphatemia and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229 | patient 4082 donation 5110 research 8967 membership 10442 news 15293 | |
| gbsexpertisecentrum.nl | gbsexpertisecentrum | The GBS Expertisecentrum provides information, support, and expertise regarding Guillain-Barré syndrome (GBS) for patients, healthcare providers, and researchers. | Social Organization → Patient Organizations 259 Anatomy & Systems → Neurology 1340 | question 2261 patient 4082 research 8967 treatment 21203 | South-Holland → Rotterdam 25048 |
| paget.nl | Dutch Paget Patient Association | The Dutch Paget Patient Association aims to provide information and support to patients and doctors with Paget's disease of the bone. | Social Organization → Patient Organizations 259 Essential → Health 91589 | diagnosis 1490 pain 1919 patient 4082 association 8562 | |
| alpha-1nederland.nl | Stichting Alpha-1 Nederland | The website of Stichting Alpha-1 Nederland provides information and support to people with Alpha-1 and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | healthcare professionals 235 disease 285 patient 4082 foundation 6678 | |
| de-nvs.nl | Nierpatienten Vereniging Solidair | The Nierpatienten Vereniging Solidair (NVS) website provides information and support to kidney patients and their families. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | dialysis 35 cafe 1622 patient 4082 agenda 4374 member 10154 news 15293 | Brummen → Eerbeek 328 |
| kankerlijers.nl | None | The website Kankerlijers.nl is a WordPress blog where the author shares his personal experiences after receiving a cancer diagnosis, including the emotional and practical aspects of the illness and treatment. | Emotional Wellbeing → Emotions 85 Diseases → Cancer 546 | cancer 631 diagnosis 1490 emotion 2169 patient 4082 treatment 21203 | |
| sepsisnederland.nl | Sepsis Nederland | Sepsis Nederland is a patient organization providing support to patients and their families affected by sepsis, and working to increase awareness and early recognition of the condition. | Social Organization → Patient Organizations 259 Disease & Treatment → Chronic Diseases 1168 | documentary 1081 patient 4082 story 8285 | |
| fysiostofbergbrabant.nl | Fysio Stofberg Brabant | The website of Fysio Stofberg Brabant presents the services and philosophy of a physiotherapy practice that focuses on a holistic approach to complaints, with an emphasis on addressing the underlying causes. | Body & Movement → Oral Care 318 | cause 226 patient 4082 physiotherapy 4688 complaint 6479 collaboration 16036 treatment 21203 | |
| fysiovergoeding.nl | Zorgvergoeding.com | Fysiovergoeding.nl is an informative platform providing information about reimbursement for physiotherapy and physical therapy for both patients and healthcare providers. | Legal & Financial & Career → Health Insurance 519 Medical Care & Services → Primary Care 5699 | insurer 446 reimbursement 465 healthcare provider 474 patient 4082 insurance 6359 administration 6587 | Sittard-Geleen → Geleen 978 |
| weshare2care.nl | Stichting Share2Care | Share2Care is a non-profit foundation that involves patients in research and healthcare innovation. | Social Organization → Patient Organizations 259 Entrepreneurship → Social Entrepreneurship 311 | impact 926 insights 976 patient 4082 research 8967 care 12338 | |
| wasmh.nl | WASMH - PV Foundation and Patient Association | The website WASMH - PV Foundation and Patient Association strives for the legalization of medicinal hemp oil and supports sick people and animals. | Social Organization → Patient Organizations 259 Cannabis Products → Cannabis 195 | thc 27 legalization 36 cbd 237 patient 4082 research 8967 | |
| clientenraadhwengo.nl | Coöperatieve Zorggroep Hoeksewaard | The website of the Cliëntenraad Huisartsen Hoeksche Waard and Goeree-Overflakkee provides information about the patient council, its collaborations, and goals. | Sustainability → Cooperatives 970 Health → Mental & Emotional Well-Being 23704 | care group 10 patient council 17 healthcare provider 474 patient 4082 collaboration 16036 | South-Holland → Goeree-Overflakkee 1757 |
| non-twente.nl | Nierpatiënten vereniging Oost Nederland | The website of the NON – Nierpatiënten vereniging Oost Nederland is a platform for patients in the Twente region, particularly from the Medisch Spectrum Twente and Ziekenhuis Groep Twente hospitals, to support each other, share information, and engage locally in activities related to kidney diseases. | Social Organization → Patient Organizations 259 Diseases → Kidney Diseases 32 | dialysis 35 patient 4082 agenda 4374 newsletter 6504 association 8562 | Overijssel → Twente 2578 |
| josjeswinkels.nl | NEE-eten | This website is the online platform of Josje Swinkels, an author and blogger who shares her personal stories and experiences, particularly about the birth and upbringing of her children, and her work as a journalist and writer. | Social Organization → Patient Organizations 259 Literature → Authors 409 | blogging 112 diary 212 novel 440 journalism 632 writing 1504 patient 4082 | |
| medischtekstschrijver.nl | Sigrid Hendriks | The Medisch Tekstschrijver website by Sigrid Hendriks provides professional, accessible medical texts and support for organizations and professionals, with a focus on clearly explaining complex medical topics. | Social Organization → Patient Organizations 259 | facilitator 116 healthcare 2316 patient 4082 education 13471 | |
| pvmt.nl | Patiëntenvereniging Manuele Therapie E.S. | The website of Patiëntenvereniging Manuele Therapie E.S. (PVMT) provides information about manual therapy, coverage for it, and the association itself. | Social Organization → Patient Organizations 259 | coverage 348 manual therapy 1320 method 1505 therapist 1890 patient 4082 association 8562 | |
| jnjwithme.nl | Johnson & Johnson | The website JanssenWithMe provides information and support to patients about various diseases, particularly pulmonary arterial hypertension, inflammatory bowel disease, and chronic lymphocytic leukemia, and related treatments. | Social Organization → Patient Organizations 259 Medical Care & Services → Pharmaceuticals & Pharmacy 453 | disease 285 medicine 435 patient 4082 collaboration 16036 | |
| 1love4life.nl | Stichting 1Love4Life | The Stichting 1Love4Life was established as the final wish of Araldo Caster, a fighter and inspiration, to support and connect (long)cancer patients. | Specialty Medicine → Cancer Care 97 | step-by-step plan 109 knowledge 3528 patient 4082 | |
| alslimburg.nl | Stichting ALS Limburg | Stichting ALS Limburg is an organization dedicated to research and support for individuals with ALS and their families. | Charities → Fundraising 1005 Neurological Disorders → ALS 12 | als 45 sponsorship 2686 patient 4082 research 8967 | Limburg → Venray 1601 |
| rnv-mn.nl | Regional Kidney Patients Association Midden Nederland | The Regional Kidney Patients Association Midden Nederland is a patient organization dedicated to supporting and representing kidney patients and their loved ones in the Midden Nederland region. | Social Organization → Patient Organizations 259 Disease & Treatment → Diseases 829 | dialysis 35 subsidy 2649 patient 4082 association 8562 | Utrecht → Woerden 2642 |
| elsfranssenfonds.nl | Stichting Els Franssen | The Stichting Els Franssen is a foundation that provides financial support to patients and institutions in Limburg, with the aim of promoting the well-being of people. | Social Organization → Patient Organizations 259 Social Services → Welfare 1001 | living environment 177 medication 1164 patient 4082 research 8967 treatment 21203 | Netherlands → Limburg 31909 |